Tuesday, January 12, 2010

12/365...apparently I suck at waiting


Yeah, I know.
With so much practice you would think I'd be a master.
But, no.
I can wait for the baby boy
(painful as that was after seeing this on June 24th 2008)


but I can't seem wait for the support and help I think the dude deserves.

BenManh has been referred for speech support as his expressive language is lagging and he requires a followup on the whole swallowing thing.  Referred Dec. 22.  Of course he needs an audiogram prior to his speech screening.  The audiogram, with the ENT is May 5th.  Nearly 5 months later.  Haven't heard from the speech people but I've heard of people waiting a year.  A YEAR!  How far behind do we want these kids to get before we take a look and a listen and give their parents a few pointers?  Brutal.

So I chatted on-line with a speech teacher with my board of education.  Got some ideas.  A few games to play to get us past that hump I call MAAAAM..which meant pick me up pass me more noodles play cars with me and do it all right this second please....

We only had mom.  Lots of phoneme rich babble but there was no echoing behaviour.  Truck, the first word had disappeared never to be heard again.  The doctor was worried.  So MAAAAM got to work.

And now we have a bit of language...mostly copying, using the words when prompted...up, nana, bye-bye, nite-nite, more...I'll show a wee video of our progress as soon as I figure out why I can't upload it anymore.

And we have a speech path/feeding specialist assessment on FRIDAY.   THIS FRIDAY!  It's costing me.  The initial assessment will be completely covered by my employee insurance and then I'll have a whopping 80 bucks left to play with for the calendar year.  This is the cost of not waiting...and I don't wait well anymore. I'm not willing to wait for next October...Dude will NOT be taking thickener to his frosh week parties if I have anything to say about it.

Solids?  No problem...only the liquids ar tricky.


1 comment:

Samantha said...

I can so relate... wow, words! We are not getting words, just strange looks as mommy now imitates whatever noises we make, wherever we are, even if she is in the middle of a conversation with someone else.

I dropped off the letter canceling our insurance on Wednesday and our referral happened Thursday. Glad to hear it wasn't worth much.